The £3.45 million Macmillan Cancer Improvement Partnership in Manchester is bringing together all cancer care providers in the city to improve the experience of everybody affected by the disease at every stage of the cancer journey.
Macmillan is working in partnership with the three Manchester Clinical Commissioning Groups, people affected by cancer, GPs, NHS Hospital Trusts, St Ann’s Hospice and Manchester City Council.
On this web page you will find information on the progress of the partnership as it is developed and implemented.
MCIP LUNG AND BREAST PATHWAY WORK GATHERS PACE – CLINICAL WORKSHOPS PLANNED
By Professor Nigel Bundred and Dr Phil Barber – MCIP Phase 2 Clinical Leads
Lung and breast cancer treatment and outcomes in Manchester are very different from one another, but each pathway needs to change if we are to improve mortality rates and support people who are living with and beyond cancer.
Lung cancer is more common in Manchester than elsewhere for a number of complex reasons including smoking levels and lifestyle. Many people delay seeking help or miss the warning signs- and so more patients die from it. We also know that our complex system of multiple providers can contribute to delays in diagnosis and treatment.
Manchester’s breast cancer care record presents a different picture with incidences below the national average, though mortality rates are slightly higher. We have a 90 per cent 10-year survival rate, but that poses different challenges for our ability to support survivors post-treatment.
The Manchester Cancer Improvement Partnership is a significant opportunity to improve patient outcomes. Through Macmillan, the Clinical Commissioning Groups and local NHS Trusts, we are able to work with patients, carers and families to ensure that the re-design responds to the real needs of those who can benefit from it.
Many of our clinical colleagues were involved in workshops last year which helped us create logic models. These set out the scale of the ambition for Phase 2, which looks specifically at the re-design of lung and breast care pathways.
Since the signing of the £1.1 million Phase 2 agreement in December 2013, there has been solid progress in recruiting implementation staff and in the planning and design of services based on the logic models.
We have formed a task and finish group to drive on the programme which includes Wendy Makin, Deputy Medical Director at The Christie; Janet Tonge MCIP Programme Lead, and colleagues from the local NHS Trusts. The City Wide Commissioning team has also been developing service specifications based on the logic models.
Clinical workshops will be held to scope and plan work to meet the ambition in the logic models such as changes to breast care follow-up; and survivorship including late effects. The lung discussions will centre on increasing awareness and early diagnosis, care co-ordination, and surgical resection rates.
There will also be discussions around both cancers on self-management, palliative care, healthy living, and psychological support.
The progress that has been made to date is down to the high level of engagement and determination by clinicians in Manchester to improve cancer care. There is a real sense that we can achieve better outcomes.
Contact firstname.lastname@example.org or call 0161 765 4558 if you wish to find out more.
Manchester Cancer Improvement Partnership PHASE 2 FUNDING AGREED
A funding agreement to commit a further £1.1 million to the Macmillan Cancer Improvement Partnership in Manchester has been approved by the charity after the successful launch of Phase 1.
The first £2.35 million phase is focused on improving primary, community, palliative and end of life care.
The second phase is now underway to devise and implement plans to improve outcomes for breast and lung cancer patients in Manchester.
The latest work will build on Phase 1 to develop seamless patient pathways for the entire cancer journey through better communication, improved information and systems, and some new roles and services where the need is identified.
Meet the Programme Lead
‘Improving cancer care in Manchester’ – It’s a simple phrase but the ambition and task of identifying the need and developing solutions are often complex.
The new programme Lead Janet Tonge is working with its partners to find new ways of working together that will give everyone a better cancer care experience and ultimately increase survival rates.
In a career that began in social welfare and engaging communities in her university town of Oxford, Ms Tonge went on to lead complex and challenging multi-agency regeneration projects.
Notably she headed a Pathfinder Initiative in deprived areas of Stockton-on-Tees, working with the Department for Communities and Local Government, police, social and health care agencies and local people to reduce crime, health inequalities, morbidity rates and unemployment
That and her work across the health and social care spectrum have equipped her with the ability to take the words agreed at stakeholder meetings and translate them into action on the ground to deliver the ambition. The national charity context is also familiar to her having worked as Head of Strategy Management at the National Trust.
“The partnership has been developing really well. There are a lot of good people in the right positions. We’ve got very different organisations coming together - multiple parties who want to make wide-scale improvements happen,” said Ms Tonge.
“I’m here to help people to work to ensure that shared visions and commitment to change becomes a reality for local people.
Formed in December 2012, the groundwork was laid by Macmillan throughout the partnership’s first year with the creation of a governance structure; recruitment onto working groups of people affected by cancer, clinicians and managers; and the launch of a series of workshops to identify where the cracks are occurring in the current system - and what could be done to fill them.
Under Ms Tonge the work has begun to implement the changes on both Phase One of the partnership, which focuses on the entire cancer journey from pre-diagnosis to survivorship and palliative care, and Phase Two, which will review and improve the care pathways for lung and breast cancer patients.
Ms Tonge said: “All credit to Macmillan for putting the funding in and creating this opportunity. We’ve been given the space and time to get the right people together to step back and look at what we can do to make care better for patients and their families.
“Opportunities like that don’t come along every day and we all know that. The inclusion of people affected by cancer at the heart of this partnership is incredibly important and will be the key to its eventual success,” added Ms Tonge who has recently had experience of a family member undergoing treatment and care for bladder cancer.
“Like many of us I’ve had my own personal worries and examinations for cancer and when a family member is diagnosed it brings home what the patient experience can be like – and where it can improve.
“I’m excited by this partnership. There’s a clear set of agreements to make more use of cancer care reviews, training and develop a quality mark for GP practices. So the first job for the programme team that’s being recruited now will be to work with our clinical and commissioning colleagues to make this happen.
“Manchester as a city has a culture of innovation and there’s a tremendous energy and optimism among all the professionals involved in the MCIP. I feel privileged to be helping make this incredibly important ambition happen.
We are looking for people who want to make a difference to cancer care in Manchester for themselves and for others who are affected by the disease now and in the future.
Our volunteers can give as much or as little time as they can spare and there are a variety of roles and opportunities available.
We need them to tell us what works well, what needs improving and why – and they will have the opportunity to take part directly in pushing those improvements through.
Helen O’Neill, Cancer Voice, said: “Clinically, I feel I have been given the best of treatments, and I’ve been under 6 different consultants at 3 different hospitals. This brought with it lots of delays, problems in communication, oversights and unnecessary stress, all of which could be remedied without too much effort or expense.”
We have some great ideas about how cancer care can be improved, but we need to check with people that we’re on the right track and involve them in designing new services and new ways of delivering services.
If you have been affected by cancer, live in Manchester and want to get involved in improving Manchester’s cancer care, contact Caroline Pundyke, User Involvement Lead by email at email@example.com or you can find us on Twitter at @ManchesterCCGs or @macmillanMANC or pick up a leaflet at any Macmillan Information Centre in Manchester, which can be found through www.macmillan.org.uk. You can also telephone 0161 765 4122.
You can also click here to read about the different ways you can be involved.
TRIBUTES TO MCIP GOVERNANCE BOARD MEMBER JONATHAN LEWIS WHO DIED 18 MONTHS AFTER LUNG CANCER DIAGNOSIS
Tributes have been paid from across Manchester’s cancer care sectors to MCIP governance board member Jonathan Lewis, who devoted the final months of his life to working on the partnership.
Jonathan, 52, died peacefully at his central Manchester apartment 18 months after being diagnosed with terminal lung cancer.
Linda Hill, Macmillan User Involvement Coordinator, who recruited Jonathan to MCIP, said: “Jonathan’s contribution to helping forge fruitful relationships with the collection of large and complex institutions involved in this partnership was immense.
“He had the ability to communicate with people at every level and understood the complexities of the task, but his great success was in always bringing the focus of this partnership back to where it should be – and that is on putting the needs and wants of people with cancer first.
“What was not always apparent was the huge personal sacrifice that Jonathan made in devoting the remaining time of his life to MCIP. He prioritised MCIP and we at Macmillan and all the partners involved are incredibly grateful to him for that.”
South Manchester Clinical Commissioning Group Chief Officer Caroline Kurzeja said: “It was our great privilege to work with Jonathan on MCIP. We all know that the success of this partnership is deeply rooted in its involvement of people affected by cancer.
“Jonathan instinctively understood our challenges and had the vision and considerable geniality to help us through any inevitable sticking points. He will continue to inspire and influence all of us within MCIP.”
Nina Jackson, Macmillan Cancer Voice, who worked alongside Jonathan on MCIP said: “The first thing that struck me about Jonathan was how perfectly his orange tie and socks matched! It didn't take long to realise there was a lot more to Jonathan than his dress sense.
“I admired him and the way he was so open, encouraging and determined to make sure the patient's voice was heard and listened to. As a person also affected by cancer I am very grateful to him for all the hard work he put into MCIP and am very hopeful that he has helped improve cancer services for us all.